Showing posts with label underdrain. Show all posts
Showing posts with label underdrain. Show all posts

Sunday, June 26, 2016

Recovery Day 10



I love the Sabbath Day! Physically I've been resting all the time for weeks and weeks, but Sunday's are a more productive rest for me as I do activities that help draw me closer to my Savior. Several weeks ago, I rediscovered daily journaling as a fabulous way to process the emotional and physical health challenges with which I've been struggling. I've also been spending more and more time in the scriptures as a source for putting life's struggles into an eternal perspective.
Yesterday we learned (the painful way) that I definitely have a time limit on how long I can be up and about without my head feeling like it's going to explode. We're not sure if the shunt is draining too much or too little... The pain feels the same either way. I haven't heard it drain since yesterday morning. But maybe I just can't hear it anymore? It's all so very confusing. And it's in these moments of confusion and frustration that I remind myself that "God is not the author of confusion, but of peace" (1 Corinthians 14:33) and I turn to my Savior in prayer. And guess what? He helps still my soul every time. #BrainSurgeryRecovery #hydrocephalus #ShuntsAreWeird#SabbathDay #HeLives

Thursday, June 23, 2016

Recovery Day 7




I can't believe it's been a week since my surgery! It's been an emotional roller coaster, for sure, especially as I remember how much I hate shunts. I mean I really truly hate having this pressure valve and tubing system manipulate the drainage of my CSF. Sometimes it drains too much. Sometimes it drains too little. Either way, I get an awful headache. And when my pain increases, my emotions start to overwhelm me and drag me down a path of ridiculous negative thinking. Crazy emotions are also a side effect of brain surgery. So I've been forgiving myself for this lack of emotional control. It's totally normal. But knowing that doesn't necessarily make it any easier so I simply ride it out until I'm distracted by something else.
I'm grateful for my hydrocephalus support FB groups that have been helping me keep the physical and emotional pain in perspective. One of my darling friends who's had three times the number of brain surgeries as I've had, gently reminded me yesterday that this shunt is working with my ETV to keep me alive so that I can be present with my family and live a pretty normal life. She said it might be a bit more painful, but I'm alive.
Truth.







Thanks for the encouraging words and prayers, my friends. I'm healing more and more every day.