Showing posts with label shunt revision. Show all posts
Showing posts with label shunt revision. Show all posts

Friday, October 21, 2016

Hospital Day 10

I stayed in the hospital a day longer than planned to help get some semblance of control on my pain. Yesterday was seriously one of the most painful days (physically and emotionally) since all of this began in April. And the resident in charge Wednesday night/Thursday morning kept telling me that my surgery was complication-free and that I was exaggerating my headache pain. He said Tylenol (500mg) was more than I needed for my imagined pain.
Obviously, this resident and I had some issues yesterday. Again, it goes back to what I've been saying since April: YOU are the expert with your body. YOU know it better than anyone else. When something is feeling "off," be aware and be your own advocate even when every dr questions your sanity.
And sure enough, yesterday's CT results showed that my brain is swollen, it's filled with pockets of air, and I have some intraventricular bleeding. All of that adds up to a ridiculously awful headache that took all of Thursday and most of last night to begin to get on top of the pain. Thursday was a really rough day. Like, seriously one of the worst (in regards to pain and emotion) these last several months.
Again, thank you for your prayers! Each of your pleas on my behalf to our Father in Heaven is blessing me and our family with strength, courage, and determination to get through another day.

Tuesday, September 20, 2016

Vision Improving After Shunt Revision

I'm wearing my contacts today! It's the first time since May!! My vision is finally improving after this summer's brain drama. Woohoo!!!

Monday, August 29, 2016

Brain Surgery #6

Brain surgery #6 is on Wednesday. They're going to replace my shunt valve because it either under or overdrains CSF. We're hopeful that this Medtronic Delta valve will work better. But who knows?!! I miss my ETV.
We all learn life's lessons in our own ways and circumstances. I don't know why I get to learn them through physical challenges, but please don't compare your headaches or your difficult day or your problems with mine. Just because your issues don't require brain surgery doesn't mean they're not difficult, right?! With some of my friends I tend to think, "oh man! I'm SO glad I only have to endure brain surgeries instead of her drama! I'll pray for her tonight!"
The Lord strengthens us to rise above the challenges we've been given so that we can grow to be the sons and daughters our Heavenly Father knows we can become.

Wednesday, June 8, 2016

Shunt Revision

This is the amazing, wonderful, and caring neurosurgeon who called me yesterday to see how I was feeling. He's such a blessing for countless families and individuals who struggle with hydrocephalus!

Tuesday, May 24, 2016

"Waiting for the shoe to drop..."

Still Day 30.

Compared to Jen, my four (almost five) brain surgeries are nothing! She's our hero! And so is Dr Walker. His texts this week have helped me stay positive and hopeful. Our hydrocephalus community is amazing! I love working with all of them!!!